Sensory Friends Disability Blog

5 Fun Ideas for Having a Safe and Fun Halloween During a Pandemic

10/29/2020

Whether you plan to keep your Trick or Treat plans or stay in this Halloween, there are ways to stay safe and have fun without cancelling a celebration most kids look forward to each year! This has been an unusual year for all of us. Since the start of this year and being struck with the COVID 19 pandemic, we have all found innovative ways to learn, work, entertain ourselves, and spend quality time with family and friends who are near and far.

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Treating Autism with Medical Cannabis Part VI: "Our Family's Results!"

9/5/2020

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Our journey as a family exploring the healing power of cannabis for our son Richie has been a long learning experience. While the learning curve was an arduous one, I’m happy to report that we’ve found the right cannabis medication that works well for Richie. The most interesting part of my experience was how much I had to learn. Thankfully, I had Dr. David Berger of Wholistic Releaf for guidance, other parents for support, their shared experiences, and online resources for further research.

Medical Cannabis is not dangerous

For prescribed drugs that are approved by the FDA, there are side effects, some are dangerous or life threatening, some are mild, and some may cause minor or great discomfort. If any drug is taken for long periods of time, there will be concern for correct dosing.

When it comes to medical cannabis, there is one fundamental and important fact that no one can deny (medical professionals, drug enforcement agency representatives, and concerned citizens): it is certainly an alternative medicine with very low risk.

Now, I’m not suggesting that negative side effects will not occur. It is very possible to experience discomfort due to feeling too sleepy, disoriented, anxiety, paranoia, dizzy, unmotivated (couch-lock), uncomfortable with dry eyes, dry mouth, headaches, or other side effects. If you have these reactions, the kind of good news is you can stop taking the medicine immediately (without having to wean yourself off like some other drugs) and it may take several hours before these effects wear off. The bad news is if you are treating a loved one with these strains, (like my son Richie who has autism), this could trigger more challenging behavior. Medical cannabis provides different results and experiences for everyone.

It’s important to become educated on the endocannaboid system and strains. Leafly provides a plethora of information on the endocannabinoid system as well as a comprehensive list of hundreds of cannabis strains, reported use for effectiveness and side effects, and where they are available across the country.

Treatment takes Patience and Time

I had to keep reminding myself there is no single prescribed strain for treating autism or any specific condition in need of treatment. It's good to learn about what is working for others with similar symptoms, but always keep in mind that what works for one person will not necessarily work for another. We were given specific instructions by Dr. Berger to start by administering low doses of CBD and increasing slowly as needed until we saw improvement in any of Richie’s symptoms.

For Richie, we were looking to relieve his anxiety and eliminate his fits of violent aggression towards others (this included pinching, hitting, kicking, biting, etc.). We also wanted to stop his self-injurious behaviors (self-slapping, head banging, etc.) and destruction of property (punching holes in the walls, breaking glass, etc.).

Finding the Solution that Works for Richie

After many months of trial and error, we discovered that high doses of CBD without THC proved to bring Richie great relief. As we gradually increased his dose of CBD, within six weeks we noted that Richie’s aggression towards others, self-slapping, and other undesirable behaviors started to decrease daily and his overall mood improved as well.

Although, our family was and still is using multiple modes of treatment, we are convinced that not only is the high dose of CBD helping to improve Richie’s mood and overall quality of life, Richie’s neurologist and Dr. Berger believe it’s also helping to keep the other prescribed drugs at a low dose.

How is Richie doing Today?

Today, our recorded data shows all of Richie's challenging behavior at an all time low. Richie is doing fantastic at controlling his behavior. Richie is talking more, learning more, spelling, teaching us about his interests, and doing pretty much everything with us - it is truly exciting times.

Planning for the Future

For now, we continue to keep Richie on CBD medical treatment, maintain our Positive Behavior Support Plan, continue with his current medications, and most importantly, we will always presume competence in Richie and his ability to learn new things.

Our plan is to work with Richie's doctors and discuss how we can slowly begin to decrease his other prescription medications until he can come off them completely. We will do this when we have documented reports that show Richie’s aggressive and self-injurious behaviors are at “zero” for at least two months. We will continue to discuss, review and plan on an appropriate exit plan for the traditional medications with Richie's doctors and behavior team.

For now we love seeing him relieved from anxiety and pain. We love seeing him happy and smiling. We love watching him enjoy his life! Our overall family life is happier than we've ever been with the help of medical cannabis.

We wish you luck on your journey to finding relief with medical cannabis!

For more information about Dr. Berger and his Tampa Bay practice, please visit Wholistic Releaf.

Read our previous segment Part V: Visiting a Medical Cannabis Dispensary:
Things to know before you go!

Although we received services as part of our collaboration with Wholistic Releaf for raising awareness on treating autism with medical cannabis, all opinions expressed are my own.

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On Father’s Day Let's Pay Tribute to Dad with 7 Unique Gift Ideas

6/14/2020

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As a blended family, we celebrate Fathers Day in many ways. We honor my husband Kirk for being a great dad to his son Tiki, and a great step-dad to my son Richie. The relationship Kirk has with both sons are unique to his individual connection to them, but he loves them and I’m grateful for the love I get to witness everyday between father and son and stepson. This Father’s Day I plan to spoil my husband. I’m going to make him his favorite breakfast; Ackee and Salt-fish (Jamaica's National Dish), his favorite dinner (stewed Oxtails with Butter Beans with Rice and Beans), and I’m planning on surprising him with several unique gifts this year that just might interest you too!

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Barbie is on the Diversity and Inclusion Move and It’s Powerful!

5/27/2020

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All Photos in this Post are by Mattel

Over the years, we have all witnessed the famous transformation of our beloved Mattel Barbie doll and we have enjoyed every moment of it. Decades ago, Barbie’s representation of the little girls who loved and played with her was pretty marginal. Barbie was blonde with blue eyes for many years before she finally had brown hair! Still, her figure was impossibly thin, and she only ever seemed flawless and perfect. I’m a seventies child and had quite the impressive collection of dolls as a child. The only doll that came close to representing me was my Cher doll - and she looked nothing like me!

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5 Quarantine Tips for Dealing with Challenging Behavior in Kids with Special Needs

5/2/2020

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We are all treading through uncharted territory right now as we are dealing with having to take caution against a fast spreading illness, decreased hours or losing our pay entirely, helping our kids with online learning - while balancing our already stressful lives before COVID 19 and all that followed. Add to this the struggles that come with challenging behavior exhibited by our children and teens with special needs and we’ve got a well-stirred recipe for anxiety and some serious meltdowns.

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April is Autism Awareness Month – Why Awareness is Still Needed

4/19/2020

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Autism awareness is a topic that is discussed all year ‘round. However, during the month of April, we hype up awareness by sharing and celebrating success stories of individuals and children on the spectrum who are doing and learning things people didn’t think at one time were possible. I have heard people mention that we are inundated with information about Autism and that it’s too much. I’ve also heard others mention that they despise Autism Awareness Month because of their private struggles with autism as a self-advocate and as a parent. I understand why people may feel the way they do, there is no easy path to follow when living a life with autism or caring for a loved one who has it. Still, autism awareness is needed for understanding, for sensitivity, for acceptance and access.

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St. Jude Children’s Research Hospital Takes the Lead When it Comes to Defeating Childhood Cancer

12/31/2019

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For years, among the many charities I have supported, St. Jude Children’s Research Hospital is the one I find myself drawn to when it comes to becoming a continuing supporter – and with good reason. Who wouldn’t want to support a cause working to relieve and prolong the lives of children having to deal with the cruel outcomes that come with having to fight aggressive cancers? Join in on St. Jude’s lifesaving mission this Thanks & Giving season by donating with your Domino’s order in-store or online.

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Best and Fun Gift Ideas for Kids and Teens with Special Needs

12/24/2019

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There is always a season or reason for gift giving, since after all, there are holidays, birthdays, graduations, and sometimes just random acts of kindness. These special occasions remind us that love, togetherness, and feelings of gratitude and gift giving are always in season.

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How to Improve Parenting Our Child’s Digital World

11/12/2019

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I had the pleasure of sitting next to these two veterans at the dealership where I was getting my car serviced today. They were entertaining as they carried on a conversation about how things were during their time and how sad they view the world today. They recognize that technology is a blessing, but they believe it comes with great cost.

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I Love my Husband - But He’s Not a Saint for Staying

10/14/2019

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I know the title sounds a bit absurd – after all – longevity in any marriage is precious - couple that with step-parenting a teen with autism and to some, this might be something of a phenomenon. I just don’t believe it should be that way. I am hurt by the number of times my husband is told he is a saint for staying with me - a special needs mom, and for being a step-dad to my son who is a teen with autism. I think it's important to mention that my husband stays because he is drawn to us by love, not charity.

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Our Family's Experience Using the Person-Centered Planning Process

6/11/2019

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Not so long ago, I wrote about how my family used the positive behavior process to help manage our son Richie’s challenging behavior. The entire series was about how we were able to overcome and manage Richie’s aggression towards others, self-injurious behavior, and when he became destructive in our home. We were successful using the positive behavior support process and we’re having success using it again! We had a lapse in upholding our original plan with fidelity and as a result, we were experiencing the same behaviors – only this time around it was much worse. We were dealing with the fact that Richie was taller, stronger and now repetitive self-slapping was added to his list of self-injurious behaviors. Richie’s frequent self-slapping is a new behavior that is so difficult to control and change, but it’s something we’re currently working on with a new and improved positive behavior support plan. After teaming up with knowledgeable and experienced behavior analysts and assistants, and using other therapeutic interventions, we were able to get Richie’s aggression under control again. Only this time, we took it a step further. In addition to following our well-crafted positive behavior support plan, we were going to create a Person-Centered Plan.

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Five Strong Issues in the Disability Community that are Still Trending After all These Years

3/12/2019

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There are many obstacles and issues that have made day-to-day living very challenging for individuals with disabilities for decades. Over the years, we have seen many positive changes, movements, and systems put in place that have improved the lives of individuals with disabilities in many ways. The American’s with Disabilities Act (ADA), the Individuals with Disabilities Education Act (IDEA), 1973 Rehabilitation Act, Section 504, Section 508, Workforce Innovation and Opportunity Act (WIOA) and the Achieving a Better Life Experience Act (ABLE) has improved the lives of millions.

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Treating Autism with Medical Cannabis Part V - Visiting a Medical Cannabis Dispensary: Things to Know Before You Go

2/1/2019

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If you’ve been following this blog series, you know that we have been chronicling our experience with using medical cannabis for treating our son Richie who has autism. If you’re interested in learning more about how other parents, medical professionals, legislators, and concerned citizens, have recognized the incredible potential healing power that medical cannabis has for treating patients who have tried everything else – this is the series you want to follow! That being said, if you're considering becoming or you’ve recently become a qualified patient or caregiver for your son, daughter or loved one and you’re feeling a little anxious or intimidated about visiting dispensaries for the first time, here are a few things to know before you go!

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What About Your Needs? Tips for Special Needs Parents on Meeting Self-Care Needs

11/21/2018

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As parents of special needs children, we all share unique challenges, witness beautiful moments, and experience extraordinarily stressful situations. All that is required for effective parenting, such as, patience, resilience, strength, resourcefulness and perseverance is multiplied exponentially when raising a child with special needs. It’s up to us to care about our mental health and body’s overall well-being.

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Disability Representation is on the Big Screen – Hollywood is Slowly Catching Up

11/5/2018

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When it comes to the big screen and the red carpet, the disability community continues to rank as the most underrepresented in Hollywood. I admit that it is exciting times to see more individuals with disabilities play leading roles on television or in the movies, but it’s still not enough. Many in the disability community are now questioning Hollywood why roles with specific disabilities are not played by individuals with those same disabilities. In the United States, 1 in 8 people have a disability, that makes up for about 40 million people in the united states living with a disability. That’s a pretty large population for Hollywood to consider when it comes to disability representation.

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Treating Autism with Medical Cannabis Part IV: “The Science Behind the Development of an Individualized Treatment Plan”

9/18/2018

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Since Florida has allowed access to using medical cannabis to treat eligible conditions, the use of medical cannabis continues to increase dramatically across the state. For individuals and families of children with autism who have qualifying conditions, medical cannabis has proven to be an effective treatment plan for healthcare professionals and families to consider.

Now that Richie was approved for being treated with medical cannabis and I was approved as his caregiver, our next step is going through the actual treatment process. In this blog segment, we’re going to share what we learned from Dr. David Berger of Wholistic Releaf about how to develop a personalized treatment plan for our son Richie. I’ll begin by sharing what we learned from Dr. David about the different medical cannabis strains available.

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Nonverbal vs. Nonspeaking – Why These Words Matter to Me as a Special Needs Parent

9/11/2018

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I was recently asked by a fellow parent why I refer to my son Richie who has autism as nonspeaking as opposed to nonverbal. After explaining my reasons, she felt differently and we agreed to respectfully disagree. I know there are parents who refer to their children with autism or other disabilities who don’t communicate with oral speech as “non-verbal” and this is completely acceptable. I also respect the fact that many people will not agree with my thoughts on this topic. I respect this because I was a parent who once introduced my son Richie to other people as non-verbal all the time. I'm no stranger to having unpopular opinions, but after learning just how brilliant our son Richie is, I tend to care little about what others think and more about what I feel is best for Richie.

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Treating Autism with Medical Cannabis Part III: “The Florida Medical Marijuana Use Registry Process”

9/2/2018

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In January of 2017, The Florida Medical Marijuana Legalization Initiative (known as Amendment 2) went into effect allowing Floridians the right to use medical cannabis to treat eligible conditions. The Florida Department of Health created the Office of Medical Marijuana Use for overseeing seeing the Florida Medical Marijuana Use Registry and its application process. After our first visit with Dr. David Berger of Wholistic Releaf and the completion of our application in the Florida Medical Marijuana Registry for our son Richie, we began to feel hopeful about finding relief for him and the pain, anxiety and other internal struggles he experiences daily. Everything Dr. David explained about the medical marijuana registry process was on target. If you've been wondering about applying for medical cannabis, please keep following our blog series and read about our step-by-step experience with the Florida Medical Marijuana Use Registry Process.

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Treating Autism with Medical Cannabis Part II: “Finding the Right Doctor with the Right Approach”

8/29/2018

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Medical cannabis is now becoming known as one of the safest and most effective form of treatment for many qualified medical conditions. More states are recognizing its incredible healing properties and legalizing its medicinal use. Thankfully, Florida is one of them. However, among the many important decisions special needs parents need to make, finding the right doctor for qualifying and treating your child with medical cannabis is a decision not to be taken lightly. Our family was in search of a doctor who is aligned with our beliefs for holistic approaches, knowledgeable in treating special needs children with medical cannabis, and values meaningful doctor-patient relationships. Few doctors have all of these characteristics or this level of expertise, making this one of the most difficult tasks to take on. Luckily, we found a specialist who exceeded our expectations in Dr. David Berger of Wholistic Releaf.

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Treating Autism with Medical Cannabis Part I: "Why We Chose Medical Cannabis to Treat our Son with Autism”

8/17/2018

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Autism continues to be on a “diagnosis rise” as the Center for Disease Control and Prevention estimates it affects 1 in 59 children across the United States. Many of you who have been loyal readers (thank you) of my blog know of our life as a family with a loved one named Richie who has autism. Our family has recently made the decision to treat Richie’s symptoms with medical cannabis and we want to take you along with us on this journey. In this blog series, I will share an overview of how autism impacts Richie's life and our family. This series will chronicle our experience of the application and treatment process. We hope to achieve the same life-changing results reported by other families of loved ones with autism after using medical cannabis. It's also our wish to raise awareness of how medical cannabis can be a holistic and alternative treatment option for families like ours to consider.

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<<Previous

5 Fun Ideas for Having a Safe and Fun Halloween During a Pandemic

Treating Autism with Medical Cannabis Part VI: "Our Family's Results!"

Medical Cannabis is not dangerous

Treatment takes Patience and Time

Finding the Solution that Works for Richie

How is Richie doing Today?

Planning for the Future

Related Posts

On Father’s Day Let's Pay Tribute to Dad with 7 Unique Gift Ideas

Barbie is on the Diversity and Inclusion Move and It’s Powerful!

5 Quarantine Tips for Dealing with Challenging Behavior in Kids with Special Needs

April is Autism Awareness Month – Why Awareness is Still Needed

St. Jude Children’s Research Hospital Takes the Lead When it Comes to Defeating Childhood Cancer

Best and Fun Gift Ideas for Kids and Teens with Special Needs

How to Improve Parenting Our Child’s Digital World

I Love my Husband - But He’s Not a Saint for Staying

Our Family's Experience Using the Person-Centered Planning Process

Five Strong Issues in the Disability Community that are Still Trending After all These Years

Treating Autism with Medical Cannabis Part V - Visiting a Medical Cannabis Dispensary: Things to Know Before You Go

What About Your Needs? Tips for Special Needs Parents on Meeting Self-Care Needs

Disability Representation is on the Big Screen – Hollywood is Slowly Catching Up

Treating Autism with Medical Cannabis Part IV: “The Science Behind the Development of an Individualized Treatment Plan”

Nonverbal vs. Nonspeaking – Why These Words Matter to Me as a Special Needs Parent

Treating Autism with Medical Cannabis Part III: “The Florida Medical Marijuana Use Registry Process”

Treating Autism with Medical Cannabis Part II: “Finding the Right Doctor with the Right Approach”

Treating Autism with Medical Cannabis Part I: "Why We Chose Medical Cannabis to Treat our Son with Autism”

Author: Christine Goulbourne
christine@sensoryfriends.com

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Medical Cannabis is not dangerous ​

Treatment takes Patience and Time ​

Finding the Solution that Works for Richie ​

​How is Richie doing Today?

Planning for the Future ​

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Author: Christine Goulbournechristine@sensoryfriends.com

Archives

Categories

An Important Note From Sensory Friends:

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Medical Cannabis is not dangerous

Treatment takes Patience and Time

Finding the Solution that Works for Richie

How is Richie doing Today?

Planning for the Future

Author: Christine Goulbourne
christine@sensoryfriends.com